Coming December 2009 - "Supporting Nutrition: Understanding Tubefeeding in Cystic Fibrosis - The Movie"
(Watch a preview of the video)
Tubefeeding can be a healthy decision for individuals with cystic fibrosis who are not able to achieve robust nutrition by eating alone. The decision to use tubefeeding is never easy. Children's Memorial has developed a comprehensive, multi-part video to help children and adults with CF, and their families, make an informed decision.
Featured in the full-length DVD:
Susanna McColley, MD and Nicole Berschback, RD discuss the importance
of nutrition in CF, common obstacles to good weight gain and growth, and the
gastrostomy and nasogastric tubefeeding options.
Hear from patients and families who have navigated this difficult decision and the health benefits that followed.
- Ava age 3, GT at 17 months
- Anika age 8, GT at age 5
- Mackenzie age 11, GT at age 7
- Sophie age 14, GT at age 9
- Kevin age 17, GT at age 17
- Kyle age 20, NG from age 14-17
- Veronica age 28, GT at age 14
Topics include their struggles to gain weight,the emotional reaction to the
“tubefeeding talk”, their deciding factors, the benefits that go beyond weight gain, and the pros and cons of tubefeeding. Kyle demonstrates how to insert a nasogastric tube and offers tips to make it easier, while Anika and Sophie demonstrate the
gastrostomy tubefeeding set up.
Thanks to generous sponsorship from Digestive Care, Inc, copies of the full
length DVD will be made available to CF Care Centers in December 2009.