Nutritional resources
Managing the nutrition aspects of cystic fibrosis can be a challenge. Administering enzymes and vitamins, planning meals and snacks, adding calories and working around work, school and exercise often requires focused effort. Consequently, we have provided practical information in these pages.
Our nutritionists publish a bi-monthly nutrition newsletter that is intended to meet both children's and adults' needs. "Nutrition in Bite-Sized Pieces" focuses on CF nutrition in detail, providing background information and practical suggestions including sample menus, comparison charts and graphs, and tips.
"Recipe Corner" is also created by our CF nutritionists and published bi-monthly. CF team members contribute recipes that demonstrate one of the many nutrition strategies designed to help meet CF needs. Each recipe is analyzed for calories, protein and nutrient content, and is accompanied by a personal narrative from the contributing author.
"Supporting Nutrition: Understanding Tubefeeding" (download the brochure here - in PDF format): To provide extra nutrition for optimal weight gain, tubefeeding is a healthy option for some individuals with CF. Four of our patients and their parents write about their experiences with tubefeeding: a parent of a toddler, a teenage boy who chose nasogastric tubefeeding, a teenage girl with a gastrostomy tube, and an adult patient who uses gastrostomy tubefeeding. The brochure also includes frequently asked questions, tips for the tubefeeding novice, photos of a gastrostomy tube and nasogastric tube in place, and "before" and "after" pictures and growth charts—a comprehensive resource for anyone considering tubefeeding.
"Nutrition in Bite-Sized Pieces" past issues
"Recipe Corner" past issues