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Cystic Fibrosis Center

Understanding the genetics of cystic fibrosis

Understanding the genetics of cystic fibrosis

The research being done by Ann Harris, PhD, and her team may one day lead to better outcomes for children with cystic fibrosis.

When she was a young teen, Ann Harris, PhD, discovered a book on human genetic diseases, a subject that immediately captured her imagination. That book set Harris on a course to become one of the world's top experts on the genetic basis of cystic fibrosis (CF). As director of Children's Memorial Research Center's Human Molecular Genetics Program, her research may one day lead to better outcomes for children with this life-threatening, inherited disease.

Harris and her research team, who came to Children's Memorial from Oxford University in England in October 2005, are currently working on two major CF studies. The first focuses on the regulation of expression of the cystic fibrosis transmembrane conductance regulator (CFTR) gene. Regulating gene expression refers to the “genetic switches” that turn the gene on and off in the right cell type and at the right time. According to Harris, who holds the Valerie and George D. Kennedy Research Professorship in Human Molecular Genetics and is also a professor of pediatrics at Northwestern University's Feinberg School of Medicine, progress in developing a potential cure for CF through gene therapy has been slow.

However, if the switches that turn CFTR on and off can be better understood, it may lead to enabling the next generation of gene therapy to work effectively. At the moment, the main hurdles are failure to deliver the correct genes to the right place. If this can be overcome, gene therapy may be able to reduce or prevent the lung infections that are a common component of CF.

The Harris lab's other major project is the study of mucins, the major glycoprotein components of mucous that cover the surfaces of the respiratory, gastrointestinal and reproductive tracts. By identifying the mechanisms causing their release, targeted therapies may be developed to alleviate the disease.

“If we can have some impact on preventing the buildup of mucous and the failure to clear it from the CF airway we'd be doing something immensely valuable,” says Harris. “This is an outstanding research facility with great philanthropic support from the community, which is incredibly important,” says Harris. “I came here because I wanted to do something new and exciting in an interesting environment where there's sufficient support to be creative. And that's what I've found.”

Human molecular genetics research at Children's Memorial Research Center is generously supported by The Joseph and Bessie Feinberg Foundation, Valerie P. and George D. Kennedy, and the Medical Research Institute Council.

Children's Memorial Hospital seeks philanthropic funding to enhance its programs and services. As a proud partner of the Children's Miracle Network (CMN), all funds raised in the Chicago area through CMN also benefit Children's Memorial. To find out how your support can help the hospital better serve children and families, please contact the Children's Memorial Foundation at 773.880.4237 or Foundation@childrensmemorial.org.