The JDM registry
The registry is a diagnosis-based national registry of juvenile
dermatomyositis (JDM) patients that was established and has been collecting data
since 1994.
The registry is maintained at Children's Memorial Hospital, Chicago,
Illinois, and is funded by the National
Institute of Arthritis and Musculoskeletal and Skin Diseases, National
Institutes of Health.
The purpose of the registry is to determine prevalence, incidence, the
circumstances surrounding the onset of JDM, the influences that ethnic
background may have on the disease course, and to facilitate JDM research by
physicians and scientists across the U.S.
Contact Lauren Pachman, MD, primary investigator, at 773.880.4360.