Tetralogy of Fallot (TOF)

Tetralogy of Fallot defect

This diagram shows a tetralogy of Fallot defect.

Tetralogy of Fallot (TOF) is a complex congenital heart malformation consisting of an opening in the wall between the lower heart chambers, a narrowing of the pulmonary valve and the muscular area just beneath it, thickening of the right ventricle, and abnormal position of the great artery (aorta). The combination of these four heart defects comprises the condition called tetralogy of Fallot. The result is that blue blood from the right ventricle is partially blocked from getting to the lungs. Instead, some blood can go through the VSD and out the overriding aorta to the body.

Symptoms of the condition

Children may appear cyanotic, which is the discoloration of the skin and mucous membranes due to deficient oxygenation of the blood. The child will not appear as pink as normal; his or her skin, lips and nails will appear to have a bluish color. Another more serious symptom and event is called a “Tet spell,” something that is sometimes seen in children with severe TOF. In a “Tet spell,” the extra muscle in the heart below the pulmonary valve may squeeze down tightly, allowing very little blood to get to the lungs. The baby becomes irritable and very blue, breathes very fast and may even pass out. If this happens, it is essential to bring the baby's knees all the way up to his chest, call 911 and alert the doctor immediately. A “Tet spell” can be very dangerous for the baby and may require urgent surgery.

Surgical repair of Tetralogy of Fallot This diagram shows the result of the surgical repair of tetralogy of Fallot.

Treatment for TOF

If the branches of the pulmonary artery are close to normal size, this operation can be done in one step. If, however, the pulmonary arteries of the baby are too small, an additional procedure may be needed first to help the blood vessels grow to a more normal size. Complete repair of TOF is usually done in the first year of life. It consists of patch closure of the VSD so that the aorta arises solely from the left ventricle, as well as enlarging the right ventricle outflow tract, pulmonary valve, and branch pulmonary arteries as much as possible.